Tonight when I put C to bed, he told me “Mommy, I think I’m unusual. I mean, I’m not like other kids in a lot of ways.” This is the first time he’s ever expressed that and I was a bit surprised. Despite all the things that are unusual about C, he’s never seemed to pay [...]
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In a little over an hour we’re scheduled for a feedback session with the neuropsychologist. The full report won’t be ready yet, but he felt it was important for us to talk before C starts school next week. I’m nervous about what we may find out, but also relieved that we won’t be waiting until the [...] C is about half-way through his neuropsychological evaluation and while I don’t have any results yet, it seems the doctor has already ruled out an Autism Spectrum Disorder. Back in February C’s school sprung on me that they suspected he had Asperger’s syndrome. This really caught me off guard, because I’m familiar with Asperger’s and C [...] After not expecting to hear back from our school district until the fall, I was pleasantly surprised to receive a letter last week stating that they agreed to our request for an independent educational evaluation. They sent us a short list of psychologists and neuropsychologists they have worked with and one had been a neuropsychologist [...] Well, tomorrow I take C to the developmental pediatrician. I wonder if we’ll come away with any answers. I kind of wonder what she will be able to determine from a handful of records and an hour-long appointment. Maybe this will at least set us on the right path. It’s amazing how backwards our medical system [...] While I still haven’t heard back from the neurologist at CHOP, C’s pediatrician, or my insurance company, I finally had some success with a local developmental pediatrician. The doctor C was going to see next May was able to get us in sooner. This required a lot of persistence and patience on my part. When I [...] Well, it’s been a week and I don’t have much to report as far as progress on getting a diagnosis. I found that CHOP kept shuffling my neurology request over to behavioral health, which took days to straighten out. When I was finally able to speak to neurology, they said that they would need to hear [...] Well, I was supposed to meet with C’s counselor on Wednesday, but got a call from his office saying they needed to reschedule. Unfortunately, they said he wouldn’t be available until next Friday at the soonest. I asked if there was anyone else I could talk to in the meantime and they set me up with [...] As I mentioned last week, we’ve been having a hard time finding a psychologist that can help C. I complained to my insurance company about the woman who was ready to blindly diagnose him, to which they were largely unsympathetic. While I can somewhat see the psychologist’s perspective (she can clearly see that he needs help [...] I have some good news to share, which is a nice change from my usual worries or complaints! First, C was able to start OT and PT last week, so will get a month of services in before the summer. He seems to enjoy them both, so he is only a bit bothered that I have [...] |
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